A personal website by Khürt Williams, with inchoate ramblings on technology, photography, beer, and geekery.
Tag: Thyroid Eye Disease
Next month I will have orbital decompression surgery to address some of the issues with my eyes that have been caused by thyroid eye disease. There is a 30% chance that the surgery could cause some double vision which means that after recovery surgery, which can take up to two weeks, I may have second surgery a few months later to correct the double vision.
Recovery could be painful, and I may have to keep my eyes covered in bandages, something that I think will be challenging for me.
At my radiologist follow-up on Tuesday, I confirmed that just a weeks after losing my hair and ruining my diabetes blood glucose control, the improvement in my eyes has lapsed. The proptosis is back. The red tissue in my left eye has started to re-appear. My eyes are extremely dry and gritty.
I had a an appointment at Wills Eye Institute this morning. The doctors did the usual eye tests, including testing for colour blindness, filed of vision, etc. They commented on how much better my eyes look. But I reminded them that they felt no better than before the treatments. They conceded that point but want me to look on the bright side (no pun intended). I just can’t’ right now.
Chronic diseases tend to sap the patients mental and physical energy. The steroids worsened the Type 1 diabetes, and it will take some time before my body adjusts back to before steroids. My hair fell out from the radiation. I don’t recognise or like the face I see in the mirror. It will be months before I look like “me”.
But even then, there is more work to be done. I am scheduled to meet with the orbital surgeon in September. We may have to plan for orbital surgery.
I want it all to be done. I feel like crying.
These doctor visits start at 8 AM, and often we are not done until close to lunchtime. Today we were done at 11 AM. Bhavna wanted something to drink, so we walked along Walnut Street at the Wawa. Two doors down are the SweetGreens, so we stopped in an bought a salad for lunch. I ate my Fish Taco salad in the car.
I brought my vintage Asahi Pentax Super Takumar 28mm f/3.5 M42 film lens with me. All of the images here were shot with this lens mounted to my Fuji X-T2. I am pleasantly surprised by how well the lens performed on the Fuji X-T2. Hopefully, without sounding self-aggrandising, I think I did a good job operating the fully manual lens.