I am under the care of a great endocrinologist, but until my Grave’s disease is under control it has taken a toll. It affects my ability to work effectively. Now that I work in Manhattan part of the week and commute a little further into New Jersey for work, the stress on my psyche and body has been taking a toll.
The work itself isn’t stressful. It’s the commute to New York City. It’s two hours from my door to the front door of the office building in lower Manhattan. Two trains and one ferry. With my body hustling the whole time. The PATH Train is the worst. I never get a seat. I get to work and my back is in pain. It’s an open plan seating space so I can’t put my feet up and I can’t escape to my car to just close my eyes for 15 minutes.
Grave’s disease is playing havoc with emotions as well. I can go from laughing to anxious and sadness (sometimes despair) all within a few hours. I have little control over this. It just happens and once it’s done I feel emotionally drained.
I sleep but don’t feel rested. I haven’t had a restful night of sleep in over a month.
I am slower than I used to be. I don’t have the energy for activities that I normally enjoy — hiking and photography. Even family events like birthday parties and BBQ in the backyard are not enjoyable.
I finally broke down crying while getting ready to drive to work on Friday. Bhavna took me to the E.R. where a battery of blood test revealed that due to interactions between some of the medications I was taken — most likely triggered by stress — I had early-stage hypertension. My blood pressure was high and trending higher. I was put on an I.V. drip, given a Percocet for the pain, monitored for several hours and send home with strict instructions to discontinue my medication until I could see my primary physician and endocrinologist.
I must admit I was scared. And my poor wife sat next to me the whole time stressing out.
I am feeling better today. But not great. Not 100%. Not my usual self. I’ve lost control of my body. Perhaps that’s another stress point. With Type 1 diabetes, with testing and diet, I feel I have some control. With Grave’s, I have no way to test if things are improving or worsening. I have to do blood test every six to eight weeks in a lab and wait 48 hours for the results. It’s not ideal. I’ve also had more years of practice managing my Type 1 diabetes.
I discussed buying a blood pressure monitor with Bhavna or at least taking a trip to CVS to test my blood pressure at least once a week.
It’s Sunday and I am already dreading going back to work on Monday.
In the meantime, I am doing what I can. Breathing in. Breathing out. It’s all the control I have.